Monday night Carla had a scary little incident that looked similar to when she got the PRES syndrome after she had her transplant. She was seeing things that weren't there and in a dream like state for about an hour and a half. I was so scared. I told the nurse that I was worried about PRES, that I wasn't interested in giving her any immunosuppressants until we knew her levels and that I wanted the doctors. Turns out she is fine now (thank you Jesus) but one of her med levels had jumped from 5 last Monday, to 10 this Monday, to 14 yesterday... and that's without giving her her Monday night dose. I can't even imagine what damage could have been done had they given her the Monday night and Tuesday morning meds. The antibiotics have changed the way her body has been able to metabolize the medicine, so the level jumped really high. We will be holding that med for a while and only giving her half a dose of the tacro (which actually is metabolizing fine, but was the one that caused the PRES back in 2012).
Overall , Carla is improving, we have been able to turn her oxygen down over the last two days, from three liters, to two, and last night down to one liter! Her oxygen saturations are still in the 98-99 range, which is fabulous. She is still having at least one fever a day. They don't come on quite as fast but they are still rearing their ugly heads. Let's see if I can upload a couple of pictures...
|Taken Saturday, at Benefis in Great Falls.|
|Getting ready for the Mercy Flight.|
|Monday, after I gave her a shower and braided her hair.|
Here's to another day of healing and prayers for healthy lungs.