11/15/13

Happy 1 Year Heartiversary!!!!

On this day one year ago we sent our daughter off to surgery, to have her broken heart removed and replaced with a fancy new four chambered ticker!  It would turn out to be one of the longest days of our life... followed by 36 days in the hospital to recover, facing more twists and turns than a roller coaster ride.


Before she was taken to surgery, with Grandma Bev, Bobby and I.  Our sweet BRAVE baby girl!  

Oh what a difference a year makes!

Today before school :)
On this day a year ago, we sent our daughter off to surgery.  Today, we sent her off to Kindergarten, cupcakes in hand to pass out and celebrate her Heartiversary (or what I like to think of as her Re-Birthday).

In the first year after transplant, your body is more likely to reject the donor organ.  Therefore, the target med levels are higher in the first year, and we are looking forward to lower target levels!  We have an upcoming biopsy on December 2nd, and if her heart/lung pressures have come down from her old heart failure/fontan circulation pressures, we MAY be able to take her off of sildenafil (which she currently takes 3 times a day)!  So, we are praying that her biopsy shows both no rejection as well as perfect pressures.

In this past year Carla has gone through more than most people have to go through in a lifetime.  She has endured more procedures, pokes, reactions from meds and scars than you can probably imagine.  She has also grown 6 inches, and has oxygen levels in the HIGH 90s for the first time in her life!  She can run, hop, gallop, and go up and down the stairs swiftly.  Her fingers and toes are no longer purple and bulbous from lack of oxygen and she sleeps quietly at night, instead of coughing and puking all night long.  And, we don't have to worry that her next cold is going to kill her.

This is all due to our donor family, and we couldn't be more grateful.  On this day last year,  they lost their baby... and gave ours a second chance at life.  Please pray for their peace of heart.

Love, Jen

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