1/2/13

Getting Better...

Carla seems to be getting better and better every day!  Yesterday she seemed very much like her 'old self' more than any other day so far.  Her true spirit, personality and chatty-ness are returning beautifully!  I love the way she will sit, grin and just visit with me... it is so sweet!  

Yesterday Carla started learning how to ride her new bike that Santa brought.  It turned out to be quite trying for her...as she has never ridden anything in her life!  So, learning how to push and maneuver her feet and legs, to get the motion was quite trying.  We will practice more today...  We also shed some of her extra facial hair (via an Oil of Olay product that actually worked)!  The Cyclosporin Carla takes to make her body and heart get along unfortunately causes hairiness.  So, shedding the uni-brow and mustache are a new part of life!  Carla enjoyed the process and it wasn't at all painful, so, that's great.  We also bundled up and walked to the hospital for a blood draw last night.  Much to our surprise, Hector, our most favorite Phlebotomus was working (thank the Lord)!  We figured he would be off, because of the holiday, but he wasn't!  We love Hector because he is the best ... he gets her with one poke and is super fast. She barely even has time to worry about the pain, because he's already finished by the time she starts working up a fret.  Also, he has poked her so many times that they have a little bit of a relationship.  I think Hector likes Carla because she does't cry ... and then always gives him a little crap.  She is always thankful that he does't "Make a mess" with her blood. She'll say, "Few, that was close..." (a lot of nurses have spilled her blood in the past). When he forgets her favorite color is pink, and puts a different color of Coban around her wound, she will say ... "Maybe next time you can use the pink..."  he then remembers and puts a bit of pink around her arm.  It's super cute.  Last week they had little stuffed animals available and before we did the blood draw, Hector brought out a pink bear for Carla, because he remembered that she likes pink.  She named her "Pink Chalusha" (Cha-loo-sha) which kind of cracked all of us up a bit. This morning she wanted to listen to Pink Chalusha's heart...she couldn't hear it.  BUT we do have a bear that HAS a heartbeat!  So, we fetched "Rainbow Heart Sherbet" from the other room, and she was VERY PLEASED to hear her heartbeat.  Rainbow Heart Sherbet is the bear that another heart family sent us when Carla was in the hospital.  She is so tickled that it has an actual heartbeat!  

Today we have a 1:00 echo and 2:00 cardio visit.  We can never seem to get out of that hospital in under 2 and a half hours, so we will be bringing snacks, meds and media.  Next Wednesday we have a 9:00 a.m. with occupational therapy, 10:00 echo, 11:00 with physical therapy and 1:00 cardio visit...that's going to be a REALLY LONG DAY!  And honestly, so much time is just spent sitting in the room, waiting for the doctor.  In all actuality the echo takes about half an hour and the doctor visits with us for less than 15 minutes.  Add in the EKG and vitals and if everything went smoothly, we would be in and out of the whole thing in just over an hour.  But, no ...  This is why we joke about Seattle Children's teaching patience...one hour at a time.  

That's about all for now!  Things are great, Carla is more like herself every day, and we are so extremely thankful for every moment...

Love, Jen

With Cousin Tina the other day...

A family from home sent her a box the other day, these were in the box...

And PJs!  

Here she is, sassy posing her new jammies.  Thank you to the Satterwhites :)  

Yesterday, learning how to ride her bike.  

Removing excess hair!  

Trying to find Pink Chalusha's heart beat...

Oh, thank goodness Rainbow Heart Sherbet has a heartbeat!  

This tickled her...

And made her happy...

Carla's bears :)  

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