Yesterday's appointments started with Occupational Therapy, where she made and decorated snowflakes and then did some other art work. Glitter glue was a big part of the action, because squeezing it is a good hand strengthening skill, and she LOVED the glitter glue! After OT we headed over for her 9:00 echo, which went well. After that we headed to a room for the usual vitals, EKG, etc. We asked and answered questions and Jason (one of our Transplant Coordinators) seemed happy with her progress. He also went through all of her labs with us, which was nice. We then saw Dr. Kemna and she decided to cut one of Carla's diuretics completely out and to cut the other one in half as well as decreased her MMF, because the level was a bit high again. We didn't have her cyclosporine levels at that point but were promised a call later on. Unfortunately when Jason called after 7:00 last night we were informed that the lab didn't run the cyclo levels, but for some reason ran her tacrolimus levels, which were non-existent because she doesn't take tacro. A few minutes later the lab called and advised us that Carla needs to come back and give them some more blood, because they don't have enough left over to run her cyclo levels. Those dirty buggers. So, we will be headed back to see Hector tonight. Thank God for Hector, otherwise giving blood would be a big deal! He makes the process fast and painless, so, it's not that big of a deal. ... Just mildly annoying.
Hope you are all having a lovely day!