We will be getting another visit from neurology today, the physical therapist should come and evaluate her and we are trying to wean her to a normal oxygen hose because the high flow canula is ridiculous! I swear, someone should think of something better! It's hard to keep in mind that these doctors and nurses are on our side, because it seems like they are poisoning our baby with anti-rejection drugs that caused her brain to swell, give her the jitters, inability to sleep, severe diarrhea, etc. She far worse than she was with half a heart.
All I can say is ... this better get better. I understand that I am impatient. We would like her better like 2 weeks ago. There is nothing worse than watching your child be as sick as Carla has been. It is wearing for sure.
Please continue to pray that Carla's body will heal and that she will be well SOON.