Friday, Post Op Day 15

Carla continues to take one step forward, two steps back, but we are hopeful that she will just start taking steps forward soon.  They haven't had rounds yet today but I have been warned that the docs will most likely move forward with a Cath later today.  The problem is that with children who have single ventricles a lot of the time collateral veins form that lead to nowhere.  The doctors think it is a possibility that one of those collateral veins is the culprit which continues to leak blood into Carla's lungs.  During a cath the doctors could find and coil off any collateral veins, in the hope that it could stop the bleeding.  This is kind of a shot in the dark (if you ask me) but if it works it will mean Carla gets better all that much faster.  So, if they decide that is what is necessary then it is what it is.

As far as Carla goes today, her lungs continue to be junky and she coughed up a bit of blood in the night.  She is still holding her own, but it is surprising everyone. When her lungs are all junky her heart rate climbs and her respiratory rate goes up quite a lot.  Yesterday her heart rate was in the 90s or low 100s.  Today it is upward of the 130s.  Her respiratory rate was in the 20s and now it is in the 40s to 60s.  I cannot wait until she starts to just get better and better instead of all this worrying that she is going to be re-intubated all the time.  (She hates it so much and they have to keep her knocked out and then every time she wakes up she cries and fights and fights.)

On a lighter note, this morning I actually got Carla to laugh!  The doctors have this little light that they shine in her eyes all the time.  I picked it up and started "spot lighting" us all to perform... First Grandpa, then Grandma and then myself.  As I danced around being a total dork she just started laughing!  Afterwards I spot  lighted her and she did a little wiggle dance for us.  It was good for the soul.

Anyway, that's about all I have for now... Please pray that the Lord heals Carla.  She is such a little sweetheart and has been through so much... We just want her to heal so we can move forward for her.  I keep seeing her in my minds eye running around and riding her new bike (which we haven't bought yet).  She is going to be so happy and full of life when we are finished with this part of it.

Love, Jen


To Be or Not to Be said...

It's those little glimmers that give us so much hope. I loved the picture of her smiling. And that you were able to make her laugh is a really good sign of recovery. Thanks for your updates.

Shawnee said...

Hang in there as you have been. Such a sweet girl. :-) Yay for her laughter!