Since Carla has been so sick, and it is right in the thick of cold and flu season, we have decided to have Carla do school from home again. For now, I'm thinking about keeping her home until after the Christmas holiday. But, we will reevaluate what we want to do when that time comes. Her class has gotten really big (25 kids - it used to be 13) and they are very loud and rambunctious, which makes it extremely difficult for her to focus (because she's not used to being around kids). But, the biggest thing is keeping her healthy. She shouldn't have to feel like crap all the time. Also, one of the benefits of her doing school at home is that it frees us up for her appointments, etc., without her really missing anything. I will be going to the school once a week to pick up and drop off work, and we will also have a teacher come to our house a couple of times a week. So, that gives us the ability to navigate around her appointments. For instance, next week, she has a cardiologist appointment, blood draw, therapy appointment as well as a dentist appointment. Therapy is a weekly thing, cardio appointments are monthly but when we go to Seattle (every other month), it is a minimum three-day trip. One day to get there, one day for appointments, and then one day to travel home. And, that's not mentioning all the blood draws, to make sure that her drug levels are stable. We just changed the dose of one of her drugs, so that will be a minimum of two blood draws to make sure she is in range, but not too high. It's all a balancing act really.
We did let Carla go to school for the Halloween parade and party on Wednesday. She was thrilled to see her friends. It did make me a little nervous, but it's important for her to be able to see her friends sometimes too. After the school party, we took her to the town party and also trick or treating. She ended up finding a couple of her besties and did run around with them a little bit, collecting candy. So, it was a successful night. Here are a couple of pictures...
|Through the years... She goes from age 3 to 11 in this little collage.|
This year, Carla went as Pearl, a character from the Cartoon Network show, Steven Universe.
|After her shower, sorting through all her loot!|
We certainly are blessed.